CML

[}TCP{Coco]

I'm really shocked from reading this! I can't think of the right words at the moment, but I wonder what the new diagnosis means?

[Marwin]

That mean i must not die in December this year, and i dont have to make a bone marrow transplant.
If i be more then 2 years in cytogenetic remission, then i can reach a normal length of life.
The docs overlooked this possibility longer then a year, all what they said was i have to transplant that is my only one chance.

ALL WRONG!

I feel and know that i was allways right, and now i have it black on white.
The new dianosis is very fresh, i know this only for few days, and now i need some vacation.

Should i be happy about this news?


...

[}TCP{Coco]

Marwin, that's wonderful! Of course you should be happy! You've listened to what your body tells you and you were right. Even more important, you didn't do the useless transplantation.

I understand that you've gone through a lot of mental stress and frustration, of course. But maybe it's time to recover from this now. Vacation? Sounds like a good idea to me!

[Marwin]

But maybe it's time to recover from this now.

I hope that 2 for me. This thinking is egoistic, but i am also important....damn! :sniff:


Marwin

[menace]

u are important. and there are people who care

[}TCP{Carnage]

Exactly

[Van]

This is good news. Yes, try to relax!

[vare]

Hi Marwin (and hi all btw),

I have been out for a while (almost a year). Just entered the forum and got the news.
I hope your situation is bettering.
Leave a line from time to time.

[Marwin]

Hi peeps!
Long time ago now that u hear something of my health state.

In short words. In all points i was right and in all points my oncologist was wrong exept some like the only one way to get healed is with the bone marrow transplant.
I feel rly good now (body, mental and my soul (my feelings)).
The way i went was rly the hardest one for us all...myself, my mum, the doctors and so on, but it look likes so atm:
I got a survive betterment from 50:50 in a time of 4 years to 9:1!!! if i would do now the transplant.
The chances are optimized now.

The reason of this betterment is simply explained:
This experimental and new medic called "Sprycel (R)" had done a bit more as a grat job
The leukämia is rly very good under control, and this is the point.
Its again a bit hard to make the choice to a marrow transplant, because i would left again my actually good health state, but if i wait to long the leukämia can also come back anyday and then i will lose this good chance again.
Atm the value of this CMLis still droping down, so i can relax and relax and relax.....

And if the value is stop droping then is this the sign to think rly about a transplant to get healed maybe, or better i ll take this option.

This situation let give me a bit hope, and that is good.

I ll keep u informed.

<3

Marwin

[}TCP{Carnage]

That is good news m8 i am very happy for u

As for the timing if or when u decide to do the transplant (which i think u should coz if it helps .. go for it) i have had 2 friends of mine
who had waited to long to get a transplant ( not their choice obviously) but when it did become available they where to weak/ sick to survive the operation.

But i am very happy u are doing better and i am sure u will do whatever u think is right
But do remember i DEMAND to shoot a flak in ya ass in 20 years from now ( ingame of course)

[NightMan]

indeed sounds like good news good to hear

[}TCP{Coco]

That's fantastic, Marwin. I'm really happy that you feel well currently and hope that you'll find the exactly right moment to have the transplantation. I'm optimistic that everything will turn out well in the end. Keep up the good spirit, mate!

[}TCP{Ramses]

I got the impression ingame that you were feeling pretty good over the last few months, and it's great to hear it confirmed

[Marwin]

Hey!
Indeed all is good now and in future

Marwin

[dargas]

I just finished reading the whole thread, wow, I really wish you good luck and never give up !