www.tcpclan.net

Marwin · Post by **Marwin** » Wed Jun 01, 2011 1:58 pm

Not now, what i know it ll take more as a moth to get the results.

Marwin · Post by **Marwin** » Fri Jun 03, 2011 8:16 pm

Wow ^^

I forgot something to say, one important thing!

The second year past from first day with diagnosis, so i can say happy birthday to me?

Marwin

Post by **}TCP{Carnage** » Sat Jun 04, 2011 12:10 am

I demand 50 more m8 !!!!

somewhat

Marwin · Post by **Marwin** » Sun Jun 05, 2011 7:36 am

Thanks Carnage!

I hope i can fill your wish

}TCP{Coco · Post by **}TCP{Coco** » Sun Jun 05, 2011 12:13 pm

I second this one.

Marwin · Post by **Marwin** » Mon Jun 13, 2011 6:07 am

Marwin wrote:

I stoped to take my life prolonging medic called "Sprycel (R)" with the active ingredient "dasatinib".

I ll keep you up inform........

<3

Marwin

Today is day 40 without lifeprolonging medic, time pass fast.

<3

Marwin

Ronny. · Post by **Ronny.** » Mon Jun 13, 2011 9:07 pm

Even tho painfull at times, just having a crush on someone is very healthy actualy

.

I remember my sis always used to complain about her crushes, I loved mine, lol. Even tho it was a thing that never was gona happend. It was distracting and for me at that time, It was just nice to feel anything

.

Marwin · Post by **Marwin** » Tue Jun 14, 2011 3:52 am

The paradox thing is, without this medic i feel me better as i EVER felt!!!!!

But i have to be carefull, this can also be a catch of my thinking, because the illness is on the one side not dedectable anymore but can still be there on the other.

Again but, but its alos a but..........LOL

So......BUT

if i can trust my feelings, as i trusted this feelings in the past 2 years of my life, then

CAN NOTHING BE WRONG!!!!

Have a nice day/life thats the biggest wish of us all, or not?
This would fill up our heart with luck.

Marwin

}TCP{TrÃ¸nec. · Post by **}TCP{TrÃ¸nec.** » Tue Jun 14, 2011 12:44 pm

I just hope we get to see you fill your sub forum for many many years to come Marwin!

}TCP{Coco · Post by **}TCP{Coco** » Tue Jun 14, 2011 1:46 pm

Marwin wrote:The paradox thing is, without this medic i feel me better as i EVER felt!!!!!

Couldn't it be because you're not suffering from the side effects of the medicals anymore? Don't get me wrong, I really hope it is like you say. I'm just a little concerned.

Marwin · Post by **Marwin** » Tue Jun 14, 2011 6:51 pm

}TCP{Coco wrote:I'm just a little concerned.

I gave up my life Coco, the fewest stop the lifeprolonging medic simply so.

And now it expand to maybe a beautiful behind.

Its a wish from me.

To the facts:
Every month we (the Doc and i) make a checkpoint, and the illness is chronically, so the danger is under control, and if it get worse then is allways the option of the transplant possible.

This gives reassurance at all!

So! About whom we speak here should die? I am not

Marwin

Only the risk is higher, but its also not forceful, at least i hope this.

Marwin · Post by **Marwin** » Tue Jun 21, 2011 7:04 pm

A other hospital as there i regular be took a biopsy out of my skin, now we will see if i have this trisomy from birth on or not........finally. But i have to wait still 3 to 4 weeks to get the results..........but i am happy!

The oncogolist called me 2day on my mobile phone.

He asked me how i feel, and his voice was heard a bit worried to me.
I said i feel me not bad. But he warned me again that this feeling could be insidious!

Hmmm............

Marwin

And yeah! I take NOT this damn Cipralex against lovesickness.

}TCP{Coco · Post by **}TCP{Coco** » Wed Jun 22, 2011 7:29 am

Hmm, let's hope he just asked because you're walking into unknown terrain without the medics.

Marwin · Post by **Marwin** » Wed Jun 22, 2011 3:39 pm

His fear is simple explained:

He think about the worst case that can happen with this decide to stop the medic.

The CML has now enough time to develop to another illness, where this medic i stoped to take will not help after starting to take it again.
Then is my last chance i have the transplant but this take preparation time.

And if my condition is not good enough if i go in the transplant, i mean what should I say..........normal you survive this.

The stats say, if i would go now to transplant then i have a chance to survive after 4 years from 9:1, that mean one die in this time.

If i go with the bad sitaution, then reduce tha chance to survive after 4 years to 5,5:1.

All in all you can say i know my risk, and i learned to handle this and accept it, because nobody can change this........nobody!

.........and if somebody ask me the "Why" question, then i can only say its not the time now to give an answer, nobody would understand that!!!

.....and yes Coco it is unknown, more as that, the first studies startet in France to do that, but the persons have to be more as 3 years in complete remission, not only 2 months!

I have to few patience. So again i am the silly.

The only one good thing is, that i pay for it, not a other one.....
.....if it became true.

Till now all things went perfect and really good for me. The luck is with me anyhow.

I am really,....
i am really.......on thin ice!

Marwin

Marwin · Post by **Marwin** » Thu Jun 23, 2011 1:38 am

Here is a statistic for the chance/risk of a relapse.

I am Sokal and Hasford - high risk, but they had 3 years complete remission b4, as i said above.

This is with imatinib and i am on the newer dasatinib, on dasatinib such experiments do not exist atm. That stat is all what i can present now.

So what do you think?

I am on DAY 50 now!

Maybe you can understand now, why my doc is a bit nervous, and believe me 10 times more than I.
All u need to do that, is to accept that u can die, then its not rly hard.

Marwin

www.tcpclan.net

Welcome to the Board

CML