www.tcpclan.net

I am on molecular response now, and if there would be a way to reach the sleeper cells, then i would be healed.
So close to all things would be good, and so far away because nobody have the technique to kill this cells.

Thats the reason why the people with CML have allways to take the medic. There are allways sleeper cells there.


Marwin

Marwin, I've been curious for a while now and I'm just gonna ask it.
I hope it won't upset you or make you angry but I was just wondering; how long can you live with cml? how long do you think you have left?

Sorry if this was in any way offending!

Thats a legitimate question!

.........and this question is so fkn damn hard to give an answer.

Have allways in mind that i am exactly past 2 years since my first diagnosis.



I ll take now the view only to CML:
With the new medics you can survive above 6 years and more.



Now i ll take the view to the trisomy bipolarity:
If the docs are right and the CML was first and the trisomy 8 later......then i have till December 2011, or i go transplant. In years 1,5 to 2,5 years.

If I have right and the trisomy 8 is since my birth (into my whole body), then i have a higher risk to get any another cancer, but of the point to the CML i could reach with the medic a life lengh like a normal CML patient (6 years and above).



And the third thing is, that my 8p11 Vysis is conspicuous.
That means it need only a tiny thing to develop to a myelopoliverative illness. And this would be the worst case, there are more ways (more kinds of myelopoliverative) with different life lengh possible.
The biggest likelihood is myelodysplastic Syndrome, with a life lengh of 1,5 years. In this case i have to transplant.
After transplant are again 2 ways possible, if i have a relapse then i ll get....hmmmm 6 moths till one year or something like that.
If the transplant is effective, then i get 6 years and above.



Or the last one is, i go simply transplant. If it will be sucessfully then i have again 6 years and above.


The stats are mostly going not more far as 6 years, because the normal age of CML is between 55 to 60.



This all are average data, so all is very relative, but all in all you can say i have a limited life expectation.



Marwin

Forgot without life prolonging medic.

Without this medic they give you only months.
There is allways the "Why" question open what Raving Rabbit and I had wroten. Why i stopped with the medic.

I am unsure if any of you will understand that what the reason was.


The lucky thing with stopping the medic is, that i can so silly that sounds for you,
i can freeze sperm from me, there should be 3 months between stopping and freezing.
I get a real chance to can have my own childs maybe anyday with in vitro fertilisation.

I know that sounds stupid for you maybe, but its a very deep wish from me. Or at least that the possibility or a way is there to can have one.

After transplant there is no way to get your own childs.

This is a very often asked topic from young peoples with leukemia at the leukemia forum.



Marwin

In my case there should be a clear relapse after 50 days stopping the medic, the crazy thing is that anyhow i dont feel that there is a relapse.
But i have to be carefull, better is to mesure often enough. My doc has bad feelings with that what i have done.

Thanks marwin, for sharing this...
And though it's not smart to stop with the medication I can understand the reason, having children can be a satisfaction for you before you'll die.
It's really hard to read about your illness, but it also makes me realize how easy my own life is, I complain about simple small things, reading your posts makes me aware of how hard it COULD be... in some way you make me live more happily by sharing your story!
<3 Tron

}TCP{Tronec wrote: It's really hard to read about your illness, but it also makes me realize how easy my own life is, I complain about simple small things, reading your posts makes me aware of how hard it COULD be... in some way you make me live more happily by sharing your story!
<3 Tron

Wow, that i do for you! That makes me happy 2 then.



That i can sperm freeze was not planed, that is only a lucky side effect of the real reason.


Marwin

All that what i share with you is nothing special in the leukemia forum, there we have all the nearly the same troubles. The situation is simply hard, nothing else.