You know its the typical doctor to patient ratio.
He is well known renowed oncologist, and i am a nowbody.
So how can i tell him or ask him that?
Any suggestions?
Do you know the "braess`s paradox"?
In simple words: It means, if u want to reach with a action a bettering and if u do this action is all what u get a worseing.
He is absolutly sure he is right, but what when my thoughts are right, is then the transplant rly the right way?
He said the chance to survive over 4 years if i go transplant is 9:1.
That say the statistic.
But, which statistic is avaiable for constitutional mosaic trisomy 8 cases with CML???
Answer: There isnt none! I am the first PROBAND in my own study!
conclusio: I put me aware to an uncertain risk.
And where he will be if its will went worse?
...
Coco i do not beleave that he is lying, but maybe he overlook something?
In one doctor`s letter he wrote:
If the T8 will rising again then we should think about further therapeutic measures........and it raised.......and later it falled again. For me it shows that he have himself no idea, and thats maybe the reason why he dont want to speak with me about that............
For me its pitty that he do not even take the time to try a conversation.
Not even one try......
Marwin
Especially in respect to the decision about having the transplantation or not, it will be essential to know the facts.